Last night packed a scare. During the last monitoring of the day (when
they track both the boy's heartbeats for an hour or two), Bryce's pulse
dropped, as it is inclined to do from time to time, but this drop was
very far and sustained longer than any other drop by far. The nurses
literally came running in, put Nicole on oxygen and had her roll over
then over again to encourage him to move (in case he was pinching his
cord). He did pull out of it and sustained a pretty good rate
thereafter save one more dip that was not as dramatic. These pulse
descents seem to come right after Nicole has a contraction, last night,
like clockwork. Thankfully, they will not allow her to endure labor for
Bryce may not tolerate full blown labor. But for a moment, both Nicole
and I were prepared to be rushed to delivery in an emergency C-section
to remove the boys.
So, some might ask why the team decided to keep the boys cooking
considering the risks of cord entanglement in mono-mono twins. I know
our doctor back home, Dr. Harnsberger was very concerned that the
pregnancy was being allowed to carry on. So I put that question to our
visiting MFM yesterday. Cardiology said that they were fine either way,
at 32 or 34 weeks and did not think it would have much an impact either
way. However, the Fetal Care team, including Dr. Lim, Dr. Habli, and
Dr. Polzin were essentially responsible for the choice to carry it on.
While they typically take the twins at 32 weeks in mono-mono situations,
they decided in our case to extend. Several reasons. One: There is no
hard and fast rule about 32 weeks in mono-mono. Some schools go to
34. Few go to 36 if they can. 32 is more common, but the debate on
when to intervene there is far from settled. But their choice had to do
with BOTH boys. Two: She said they were prepared to handle one sick
boy, Bryce, and we anticipate him being sick when he is born, but they
were not excited about handling two sick boys if say River's lungs were
still underdeveloped and he could not be simply stabilized. So the
extra 2 weeks was in part to help insure that there was little chance of
River having complications due to prematurity. Then there is three.
Bryce. His heart has tolerated his condition miraculously well in the
womb, so, it is obvious, there is a benefit to him being in his mother's
fortress. Delivery is going to be difficult and dicey most likely and
his heart could turn either way or not turn at all, but there is a
significant enough chance that the dramatic change in pressure and his
bodies functionality could trigger very serious problems in getting
blood to the lungs to be oxygenated. So why not keep him where he has
been growing stronger safely to better prepare him for the transition as
well. Then there is the lungs in Bryce too. His have less room to
develop than River because of his enlarged heart. So they could really
do with more time. We know we have a cardiac issue, we don't want to
find a significant pulmonary issue added to the pile of complications.
All of this reasoning made sense to us and comforted us, but the dangers
of keeping him in there also manifest last night when our pulses were
raised as we watched that number go from 135 to 100 to 90 to 80 to 70 to
60 ....
Nicole seemingly caught the boys turning on video the other day with
dramatic footage of feet pushing hard against her body. Presumably,
that is when Bryce turned head down, head to head with his brother. It
is uncommon for twins to turn at this stage in the game because of
size/space issues, but he did. Those turns can be dangerous though
because of the proximity of the boys and the lack or boundary between
the two. However, we considered this position preferable to the one
Monday when River had Bryce's head locked between his knees. They have
upped the order for Ultrasounds to three a week from two a week and
about 6 hours of heart monitoring a day now. This is tricky territory.
We have our final Echo lined up for Monday morning and feel a lot more
comfortable going into that because Bryce has held so steady in the womb
for so long. Every time they have come back and said, no change, that
has been a miracle in and of itself.
We are okay. I have given up concerning myself on my blood pressure
issue and it seems to be creeping down the right direction. I will most
likely have my own Echo Cardiagram in the next couple of weeks and we
have already scheduled a scope for Nicole with Dr. Elluru post delivery
because her breathing is becoming more strained. I am glad that we have
each other as we go through this. It has both deepened our love and
our respect for one another. I love how God is working in us and our
kids to make our great little family even stronger and tighter. And we
are eternally grateful to Peggers (and Kelly, even Martha), who have
made great sacrifice of their own to keep our kids. Eden has had more
lovin' from Peggers, Kelly, Martha, and Laura (our beloved nannie) than
she would have even had at home and I am encouraged to note in my short
visits home that even with this distance from my last born daughter, she
remains a good Daddy's girl =).
Frankers, thank you for writing all this down. It's great to read, to hear your faith, and to know how to pray. Well, I mean, 'Dear God, HELP!' is probably just as effective as an informed prayer, but it makes me feel better.
ReplyDeleteAnd how cool is it going to be for the boys to have this to reflect on later in their long and glorious lives? Very cool, that's how cool.
Cool, yes, Very cool indeed!
ReplyDeleteDitto what Levi said above :) ! Glad for the excellent care you have - thank God for your doctors and may His hand guide them every step of the way. Keeping Bryce and River in my heart and prayers!
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